Avery Dial, Esq. quoted in Part B News, Patients worried about autism ‘registry’? Encourage them to ‘be heard,’ 5-5-2025

Kaufman Dolowich’s Avery Dial discusses in a Part B News article patients’ rights and concerns over the recent HHS announcement of an autism “registry.”

Mr. Dial, a partner in KD’s Fort Lauderdale office and chair of the firm’s Data Privacy and Cybersecurity Practice Group, is quoted as saying: “If such a registry were established, I don’t see how [these patients] could get around having their information put in it.” He pointed to “[existing] cancer registries, which many states have. You can’t generally opt out of having your information reported to those, but the information is protected and used in a limited way under the law. If we were to have a national autism directory, I would think it would be used int he same manner.” Outside of that, Dial says, if the registry idea is revived, “advocates should make sure their voices are heard and that it really is used for research and improving the lives of people who are affected by autism.” 

Click the PDF to read the full article. Part B News – 050525 – Patients worried about autism registry – A Dial